ALS Unit at the University Hospital La Paz – Carlos III. Madrid
The ALS Unit of the Hospital Carlos III in Madrid was created by Dr. Jesús Mora in 1990, being the first ALS Unit in Spain. In 2014 this Hospital joined the University Hospital La Paz and since then, both constitute a single institution.
In May 2018 the IMELA (ALS Institute of Madrid) was created with the aim of coordinate the ALS care in the region.
This ALS unit combines the diagnostic and multidisciplinary care for ALS patients with the clinical research focused on cognitive impairment assessment by scales validation and cognitive evoked potentials, quality of life studies, biomarkers and clinical trials with experimental therapies.
Comprehensive multidisciplinary care is provided by a team of neurologists, pychologists and nurses supported by neumologists, nutritionists and palliative care specialists in Hospital or home based. The Rehabilitation team provides motor, respiratory and speech therapies.
The Unit serves to ALS patients living in the Madrid Autonomous Community but also to many patients from other regions of the country. About three hundred patients are usually under treatment.
Contact Information
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Patient resources
Banks
Research activities
Publication
- Jesús S. Mora, Teresa Salas, María Camino Fernández, Víctor Rodríguez-Castillo, Saúl Marín, Delia Chaverri & Francisco Rodríguez-Santos. Spanish adaptation of the Edinburgh cognitive and behavioral amyotrophic lateral sclerosis screen (ECAS). Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration.ISSN: 2167-8421 (Print) 2167-9223 Published online: 06 Dec 2017
- Glycogen synthase kinase-3beta expression and phosphorylation in peripheral blood mononuclear cells of patients with amyotrophic lateral sclerosis. González-Muñoz M, Rodríguez-Mahíllo AI, Gil C, Morán Y, Moneo O, Martínez A, Mora JS: Br J Med & Med Research 2014, 4 (1): 263-71
- Mora JS, Salas T, Fajardo ML, Iváñez L, and Rodríguez-Santos F. Self-perceived emotional functioning of Spanish patients with Amyotrophic lateral sclerosis: a longitudinal study. Frontiers in Psychology 2013 Jan 8; 3:609. doi:10.3389/fpsyg.2012.00609.
- Mora-Pardina J, Dols-Icardo O, Juárez-Rufián A, Cordero-Vázquez P, Rodríguez-Rivera FJ, Guerrero-Sola A, Galán-Dávila L, Mascías-Cadavid J, Hernández-Barral M, Catalina Álvarez I, Paradas-López C, Pascual-Calvet J, Povedano M, Muñoz-Blanco JL, Rojas R, Varona L, Clarimón J, Esteban-Pérez J, García-Redondo A: C9orf72 hexanucleotide repeat study in familial and sporadic ALS Spaniards patients. Amyotrophic Lateral Sclerosis 2012; 13 (S1): xx.
- Rodríguez de Rivera FJ, Oreja Guevara C, Sanz Gallego I, San José Valiente B, Santiago Recuerda A, Gómez Mendieta MA, Arpa J, Díez Tejedor E.. Outcome of patients with amyotrophic lateral sclerosis attending a multidisciplinary care unit. Neurologia. 2011 Oct; 26(8):455-60. doi: 10.1016/j.nrl.2011.01.021.