Charité Universitätsmedizin Berlin, ALS outpatient clinic
Foundation year2002
DirectorProf. Dr. Thomas Meyer
Principal investigatorProf. Dr. Thomas Meyer
Our outpatient clinic at Charité Universitätsmedizin Berlin provides diagnosis and multicisciplinary care to around 800 patients with ALS and related disorders, including the follow-up of primary and secondary care. Our clinical research currently focuses on managed care, shared decison making (SDM) and palliative care. The ALS outpatient clinic of Charité Universitätsmedizin Berlin is the founding institution of the ALS management platform AmbulanzPartner (www.ambulanzpartner.de).
Contact Information
Restricted information
Serving population
750 patients with ALS
Patient resources
Population based register
Clinic based register
Geographically matched controls
Number of muscle samples
0
Number of skin samples
0
Number of spinal cord samples
0
Number of brain samples
0
Number of IPS cell samples
0
Banks
Clinical management research
Neuro epidemiology
Neuro physiology
Neuro imaging
Neuro psychology
Neuro pathology
Genomics
Transcriptomics
Metabolomics
Publication
- Kettemann D, Funke A, Maier A, Rosseau S, Meyer R, Spittel S, Münch C, Meyer T. Clinical characteristics and course of dying in patients with amyotrophic lateral sclerosis withdrawing from long-term ventilation. Amyotroph Lateral Scler Frontotemporal Degener. 2016;18:1-7.
- Maier A, Deigendesch N, Müller K, Weishaupt JH, Krannich A, Röhle R, Meissner F, Molawi K, Münch C, Holm T, Meyer R, Meyer T, Zychlinsky A. Interleukin-1 Antagonist Anakinra in Amyotrophic Lateral Sclerosis- a Pilot Study. PLoS One 2015;10:e0139684
- Funke A, Grehl T, Großkreutz J, Münch C, Walter B, Kettemann D, Karnapp C, Gajewski N, Meyer R, Maier A, Gruhn KM, Prell T, Kollewe K, Abdulla S, Kobeleva X, Körner S, Petri S, Meyer T. Provision of assistive devices in amyotrophic lateral sclerosis. Analysis of 3 years case management in an internet-based supply network. Nervenarzt 2015;86:1007-17
- Maier A, Holm T, Wicks P, Steinfurth L, Linke P, Münch C, Meyer R, Meyer T. Online assessment of ALS functional rating scale compares well to in-clinic evaluation – a prospective trial. Amyotroph Lateral Scler 2012;13:210-6
- Holm T, Maier A, Wicks P, Lang D, Linke P, Münch C, Steinfurth L, Meyer R, Meyer T. Severe loss of appetite in amyotrophic lateral sclerosis patients: online self-assessment study. Interact J Med Res. 2013;2:e8