Nice ALS Centre

Nice ALS center was created by Pr Claude Desnuelle in 1992. Labeled as Reference Center in the French Rare Diseases National Plan since 2003, it is integrated in the French ALS Network since 2014 and in the EuroNMD-ERN since 2017. Included in the Neurology Department of the University Hospital of Nice, the center is totally devoted to the care of patients with ALS and other rare motor neuron diseases with specific in and out-patients facilities and dedicated team. Medical staff includes neurologist, pulmonologist and physical rehabilitation specialists with formal connections with nutritionists and palliative care teams. A multi professional team of 8 paramedical, administrative, psychologist, social worker and CRA is attached, in relation with a formal devoted local network to ensure the follow-up with residence and home-care professionals.

Main activities

Care: diagnosis and management of ALS/MND patients to last stages of the diseases, quarterly multidisciplinary follow-up, coordination of medical, paramedical, social and technical support at home.

Training: training sessions for the paramedical team, home care professionals and care givers. Program for Educational therapy for patients and demonstrations of e-technology devices for home technical assistance. Involvement in working groups of the French ALS/MND Network

Research: Clinical research with regular participation to multicenter international clinical trials and academic research projects in epidemiology, genetics or biomarkers. Specific domain centered on development of BCI as augmentative and alternative communication system in collaboration with INRIA.