Only ALS Clinic in Northern Spain, based at the Hospital Universitario Basurto in Bilbao, provides care for all of the ALS patients in Bizkaia, and 80% of all the Basque ALS population. Comprehensive palliative care strategy applied, from diagnosis to death. Heavy emphasis in QoL, patient and caregiver education, clinical trials, coordination with primary care. High percentage of postmortem tissue donations, stored at the Basque Brain Bank. More recent interest in genetics and imaging.
| ALS Clinic – Hospital de Basurto , Bilbao, The Basque Country. Spain | |
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| Foundation year | 1996 |
| Director | Luis Varona, MD |
| Contact information | |
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| Address | Avda. Montevideo 18 |
| Contact | Luis Varona, MD |
| Phone | +34944007542 |
| luis.varonafranco@osakidetza.eus | |
| Website | Visit the website |
Publications
- Analysis of the C9ORF72 gene in patients with Amyotrophic Lateral Sclerosis in Spain and different populations worldwide. García-Redondo A, Dols-Icardo O, Rojas-García R, Esteban-Pérez J, Cordero-Vázquez P, Muñoz-Blanco JL, Catalina I, González-Muñoz M, Varona L, Sarasola E, Povedano M, Sevilla T, Guerrero A, Pardo J, López de Munain A, Márquez-Infante C, de Rivera FJ, Pastor P, Jericó I, de Arcaya AÁ, Mora JS, Clarimón J; C9ORF72 Spanish Study Group., Gonzalo-Martínez JF, Juárez-Rufián A, Atencia G, Jiménez-Bautista R, Morán Y, Mascías J, Hernández-Barral M, Kapetanovic S, García-Barcina M, Alcalá C, Vela A, Ramírez-Ramos C, Galán L, Pérez-Tur J, Quintáns B, Sobrido MJ, Fernández-Torrón R, Poza JJ, Gorostidi A, Paradas C, Villoslada P, Larrodé P, Capablo JL, Pascual-Calvet J, Goñi M, Morgado Y, Guitart M, Moreno-Laguna S, Rueda A, Martín-Estefanía C, Cemillán C, Blesa R, Lleó A. Hum Mutation 34:79-82, 2013.
- A PROPOSAL FOR A NEW NUTRITIONAL ASSESSMENT-BASED STAGING IN ALS PATIENTS
Laura A. Calles, MD1; Natalia Iglesias, MD1; Eider Etxeberria, MD1; Oihana Monasterio, CD1; Amaia Larrinaga, RN1; Luis Varona, MD2; Amelia Oleaga, MD, PhD1
1 Endocrinology Department, Hospital Universitario Basurto, Bilbao, Spain; 2 Neurology Department, ALS Clinic, Hospital Universitario Basurto, Bilbao, Spain
American Society of the Parenteral and Enteral Nutrition. Clinical Nutrition Week February 18 -21, 2017 Orlando, Florida
Restricted information
| Serving population | |
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| Serving population | 2.100.000 |
| Patient resources | |
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| Population based register | No |
| Clinic based register | Yes |
| Geographically matched controls | No |
Banks
There are no banks for this centre
| Research activities | |
|---|---|
| Clinical management research | Yes |
| Neuro epidemiology | No |
| Neuro physiology | Yes |
| Neuro imaging | No |
| Neuro psychology | Yes |
| Neuro pathology | Yes |
| Genomics | Yes |
| Transcriptomics | No |
| Metabolomics | No |
Clinical Trials - Industry sponsored
There are no clinical trials for this centre
Clinical Trials - Investigator initiated
There are no clinical trials for this centre