ALS Clinic – Hospital de Basurto , Bilbao, The Basque Country. Spain

Only ALS Clinic in Northern Spain, based at the Hospital Universitario Basurto in Bilbao, provides care for all of the ALS patients in Bizkaia, and 80% of all the Basque ALS population. Comprehensive palliative care strategy applied, from diagnosis to death. Heavy emphasis in QoL, patient and caregiver education, clinical trials, coordination with primary care. High percentage of postmortem tissue donations, stored at the Basque Brain Bank. More recent interest in genetics and imaging.

ALS Clinic – Hospital de Basurto , Bilbao, The Basque Country. Spain
Foundation year

1996

Director

Luis Varona, MD

Contact information
Address

Avda. Montevideo 18
48013, Bilbao
Spain

Contact

Luis Varona, MD

Phone

+34944007542

Email luis.varonafranco@osakidetza.eus
Website Visit the website

Publications

  • Analysis of the C9ORF72 gene in patients with Amyotrophic Lateral Sclerosis in Spain and different populations worldwide. García-Redondo A, Dols-Icardo O, Rojas-García R, Esteban-Pérez J, Cordero-Vázquez P, Muñoz-Blanco JL, Catalina I, González-Muñoz M, Varona L, Sarasola E, Povedano M, Sevilla T, Guerrero A, Pardo J, López de Munain A, Márquez-Infante C, de Rivera FJ, Pastor P, Jericó I, de Arcaya AÁ, Mora JS, Clarimón J; C9ORF72 Spanish Study Group., Gonzalo-Martínez JF, Juárez-Rufián A, Atencia G, Jiménez-Bautista R, Morán Y, Mascías J, Hernández-Barral M, Kapetanovic S, García-Barcina M, Alcalá C, Vela A, Ramírez-Ramos C, Galán L, Pérez-Tur J, Quintáns B, Sobrido MJ, Fernández-Torrón R, Poza JJ, Gorostidi A, Paradas C, Villoslada P, Larrodé P, Capablo JL, Pascual-Calvet J, Goñi M, Morgado Y, Guitart M, Moreno-Laguna S, Rueda A, Martín-Estefanía C, Cemillán C, Blesa R, Lleó A. Hum Mutation 34:79-82, 2013.
  • A PROPOSAL FOR A NEW NUTRITIONAL ASSESSMENT-BASED STAGING IN ALS PATIENTS
    Laura A. Calles, MD1; Natalia Iglesias, MD1; Eider Etxeberria, MD1; Oihana Monasterio, CD1; Amaia Larrinaga, RN1; Luis Varona, MD2; Amelia Oleaga, MD, PhD1
    1 Endocrinology Department, Hospital Universitario Basurto, Bilbao, Spain; 2 Neurology Department, ALS Clinic, Hospital Universitario Basurto, Bilbao, Spain
    American Society of the Parenteral and Enteral Nutrition. Clinical Nutrition Week February 18 -21, 2017 Orlando, Florida

Restricted information

Serving population
Serving population

2.100.000

Patient resources
Population based register

No

Clinic based register

Yes

Geographically matched controls

No

Banks

There are no banks for this centre

Research activities
Clinical management research

Yes

Neuro epidemiology

No

Neuro physiology

Yes

Neuro imaging

No

Neuro psychology

Yes

Neuro pathology

Yes

Genomics

Yes

Transcriptomics

No

Metabolomics

No

Clinical Trials - Industry sponsored

There are no clinical trials for this centre

Clinical Trials - Investigator initiated

There are no clinical trials for this centre