ALS Clinic - Hospital de Basurto , Bilbao, The Basque Country

First and busiest ALS Clinic in Northern Spain, based at the Hospital Universitario Basurto in Bilbao.

We provide care for all of the ALS patients in Bizkaia, serving as Reference Center por the Basque and surrounding regions.

Team members are 2 Neurologists, 1 nurse, 1 Endocrinologist, 1 Dietitian/Nutritionist, 1 psychologist, 1 pneumologist, and 1 rehabilitation and Physical medicine specialist.

Comprehensive palliative care strategy applied, from diagnosis to death. Heavy emphasis in QoL, patient and caregiver education, clinical trials, coordination with primary care.

High percentage of postmortem tissue donations, stored at the Basque Brain Bank.

Reference centre for ALS genetics and Neurophysiology, with large experience in MUNIX

ALS Clinic – Hospital de Basurto , Bilbao, The Basque Country
Foundation year	1996
Director	Luis Varona, MD

Contact information
Address	Avda. Montevideo 18 48013, Bilbao Spain
Contact	Luis Varona, MD
Phone	+34944007542
Email	luis.varonafranco@osakidetza.eus
Website	Visit the website

Publications

Analysis of the C9ORF72 gene in patients with Amyotrophic Lateral Sclerosis in Spain and different populations worldwide. García-Redondo A, Dols-Icardo O, Rojas-García R, Esteban-Pérez J, Cordero-Vázquez P, Muñoz-Blanco JL, Catalina I, González-Muñoz M, Varona L, Sarasola E, Povedano M, Sevilla T, Guerrero A, Pardo J, López de Munain A, Márquez-Infante C, de Rivera FJ, Pastor P, Jericó I, de Arcaya AÁ, Mora JS, Clarimón J; C9ORF72 Spanish Study Group., Gonzalo-Martínez JF, Juárez-Rufián A, Atencia G, Jiménez-Bautista R, Morán Y, Mascías J, Hernández-Barral M, Kapetanovic S, García-Barcina M, Alcalá C, Vela A, Ramírez-Ramos C, Galán L, Pérez-Tur J, Quintáns B, Sobrido MJ, Fernández-Torrón R, Poza JJ, Gorostidi A, Paradas C, Villoslada P, Larrodé P, Capablo JL, Pascual-Calvet J, Goñi M, Morgado Y, Guitart M, Moreno-Laguna S, Rueda A, Martín-Estefanía C, Cemillán C, Blesa R, Lleó A. Hum Mutation 34:79-82, 2013.
A PROPOSAL FOR A NEW NUTRITIONAL ASSESSMENT-BASED STAGING IN ALS PATIENTS
Laura A. Calles, MD1; Natalia Iglesias, MD1; Eider Etxeberria, MD1; Oihana Monasterio, CD1; Amaia Larrinaga, RN1; Luis Varona, MD2; Amelia Oleaga, MD, PhD1
1 Endocrinology Department, Hospital Universitario Basurto, Bilbao, Spain; 2 Neurology Department, ALS Clinic, Hospital Universitario Basurto, Bilbao, Spain
American Society of the Parenteral and Enteral Nutrition. Clinical Nutrition Week February 18 -21, 2017 Orlando, Florida

Restricted information

Serving population
Serving population	2.100.000

Patient resources
Population based register	No
Clinic based register	Yes
Geographically matched controls	No

Banks

There are no banks for this centre

Research activities
Clinical management research	Yes
Neuro epidemiology	No
Neuro physiology	Yes
Neuro imaging	No
Neuro psychology	Yes
Neuro pathology	Yes
Genomics	Yes
Transcriptomics	No
Metabolomics	No

Clinical Trials - Industry sponsored

There are no clinical trials for this centre

Clinical Trials - Investigator initiated