About ENCALS

 ENCALS is a network of ALS centres in Europe. ALS Centre membership is open to Universities/Hospitals in Europe with ALS clinical/research activity. The ENCALS bylaws can be found below:

201612_ENCALS bylaws

Aims of ENCALS

  1. To develop an European ALS trial network + database/biobank that
    1. is recognized, visible, active and efficient;
    2. agrees on collection/storage of clinical data and biospecimens on a European level;
    3. agrees on trial designs for phase II and phase III trials;
    4. will attract pharmaceutical companies to conduct trials in ALS in Europe;
    5. will be able to conduct efficiently (web-based) multinational trials within reasonable time periods;
    6. facilitates associated patient-oriented research projects (phenotyping, epidemiology, biomarkers, etc).
  2. To initiate collaboration between funding agencies in Europe to sponsor collectively investigator-initiated European trials in ALS
  3. To reach consensus on a classification of ALS suitable for use in randomized clinical trials
  4. To study novel designs for the assessment of the efficacy of new pharmaceutical compounds in ALS

ENCALS Executive board

  1. Chair: Leonard van den Berg (The Netherlands)
  2. Vice chair: Orla Hardiman (Ireland)
  3. Treasurer: Adriano Chio (Italy)
  4. Albert Ludolph (Germany)
  5. Wim Robberecht (Belgium)
  6. Kevin Talbot (England)
  7. Markus Weber (Switzerland)
  8. Pamela Shaw (England)
  9. Jesus Mora Pardina (Spain)
  10. Peter Andersen (Sweden)
  11. Francois Salachas (France)
  12. Magdalena Kuzma (Poland)
  13. Sharon Abrahams (Scotland)
  14. Julian Grosskreutz (Germany)
  15. Ammar Al-Chalabi, chair award committee (England)

Award committee

The ENCALS Young Investigators Award was designed to recognise the brightest and best young scientists in ALS, and is given for outstanding research. Criteria include any or all of novelty, challenge to existing ideas about ALS, results with patient benefit, and impact on our understanding of ALS. The competition is open to researchers aged 35 or less on 1 September of the award year. If there has been a career gap, these years can be left out. Further criteria are (primarily) working at a university/ALS Centre in Europe, Turkey or Israel.

The award committee consists of:

  1. Ammar Al-Chalabi, Chair (England)
  2. Markus Weber (Switzerland)
  3. Mamede Carvalho (Portugal)
  4. Sharon Abrahams (Scotland)
  5. Pamela Shaw (England)
  6. Susanne Petri (Germany)
  7. Ludo van den Bosch (Belgium)
  8. Luc Dupuis (France)

Programme committee

ENCALS organizes a yearly scientific meeting. The programme committee for the ENCALS meeting 2017 in Ljubljana Slovenia consists of:

Orla Hardiman (Ireland) Chair Clinician as from 2015
Caterina Bendotti (Italy) Basic scientist as from 2014
Jochen Weishaupt (Germany) Clinician as from 2016
Janine Kirby (UK) Basic scientist as from 2017
Blaž Koritnik (Slovenia) Local organiser 2017
Janez Zidar (Slovenia) Local organiser 2017
Boris Rogelj (Slovenia) Local organiser 2017

Previous meetings were facilitated by:

  1. Reisenburg (Germany) 2003
  2. Nice (France) 2004
  3. Umea (Sweden) 2005
  4. St. Gallen (Switzerland) 2006
  5. Utrecht (the Netherlands) 2007
  6. Lisbon (Portugal) 2008
  7. Turin (Italy) 2009
  8. London (UK) 2010
  9. Hannover (Germany) 2011
  10. Dublin (Ireland) 2012
  11. Sheffield (UK) 2013
  12. Leuven (Belgium) 2014
  13. Dublin (Ireland) 2015
  14. Milan (Italy) 2016
  15. Ljubljana (Slovenia) 2017

For more information on recent meetings, please see the meeting page.

First meeting in Reisenburg 2003

ENCALS meeting 2016 Milan