ENCALS is a network of ALS centres in Europe. ALS Centre membership is open to Universities/Hospitals in Europe with ALS clinical/research activity. The ENCALS bylaws can be found below:

201706_ENCALS bylaws

Aims of ENCALS

  1. To develop an European ALS trial network + database/biobank that
    1. is recognized, visible, active and efficient;
    2. agrees on collection/storage of clinical data and biospecimens on a European level;
    3. agrees on trial designs for phase II and phase III trials;
    4. will attract pharmaceutical companies to conduct trials in ALS in Europe;
    5. will be able to conduct efficiently (web-based) multinational trials within reasonable time periods;
    6. facilitates associated patient-oriented research projects (phenotyping, epidemiology, biomarkers, etc).
  2. To initiate collaboration between funding agencies in Europe to sponsor collectively investigator-initiated European trials in ALS
  3. To reach consensus on a classification of ALS suitable for use in randomized clinical trials
  4. To study novel designs for the assessment of the efficacy of new pharmaceutical compounds in ALS

ENCALS Executive board

  1. Chair: Leonard van den Berg (The Netherlands)
  2. Vice chair: Orla Hardiman (Ireland)
  3. Treasurer: Adriano Chio (Italy)
  4. Albert Ludolph (Germany)
  5. Philip van Damme (Belgium)
  6. Kevin Talbot (England)
  7. Markus Weber (Switzerland)
  8. Pamela Shaw (England)
  9. Jesus Mora Pardina (Spain)
  10. Peter Andersen (Sweden)
  11. Francois Salachas (France)
  12. Magdalena Kuzma (Poland)
  13. Sharon Abrahams (Scotland)
  14. Julian Grosskreutz (Germany)
  15. Ammar Al-Chalabi, chair award committee (England)

Award committee

The ENCALS Young Investigators Award was designed to recognise the brightest and best young scientists in ALS, and is given for outstanding research. Criteria include any or all of novelty, challenge to existing ideas about ALS, results with patient benefit, and impact on our understanding of ALS. The competition is open to researchers aged 35 or less on 1 September of the award year. If there has been a career gap, these years can be left out. Further criteria are (primarily) working at a university/ALS Centre in Europe, Turkey or Israel.

The award committee consists of:

  1. Ammar Al-Chalabi, Chair (England) – as from 2012
  2. Markus Weber (Switzerland) – as from 2012
  3. Mamede de Carvalho (Portugal) – as from 2012
  4. Sharon Abrahams (Scotland) – as from 2013
  5. Susanne Petri (Germany)- as from 2017
  6. Ludo van den Bosch (Belgium) – as from 2017
  7. Luc Dupuis (France) – as from 2017
  8. Magdalena Kuzma (Poland) – as from 2018

Programme committee

ENCALS organizes a yearly scientific meeting. The programme committee for the ENCALS meeting 2018 in Oxford consists of:

Orla Hardiman (Ireland) Chair Clinician as from 2015
Frederica Agosta (Italy) Basic scientist as from 2018
Jochen Weishaupt (Germany) Clinician as from 2016
Janine Kirby (UK) Basic scientist as from 2017
Kevin Talbot (UK) Local organizer 2018
Martin Turner (UK) Local organizer 2018

Previous meetings were facilitated by:

  1. Reisenburg (Germany) 2003
  2. Nice (France) 2004
  3. Umea (Sweden) 2005
  4. St. Gallen (Switzerland) 2006
  5. Utrecht (the Netherlands) 2007
  6. Lisbon (Portugal) 2008
  7. Turin (Italy) 2009
  8. London (UK) 2010
  9. Hannover (Germany) 2011
  10. Dublin (Ireland) 2012
  11. Sheffield (UK) 2013
  12. Leuven (Belgium) 2014
  13. Dublin (Ireland) 2015
  14. Milan (Italy) 2016
  15. Ljubljana (Slovenia) 2017

First meeting in Reisenburg 2003

ENCALS meeting 2016 Milan

TRICALS working group

TRICALS is a working group of ENCALS and reports to the ENCALS executive board. The TRICALS working group consists of all neurologists present at the TRICALS meeting at Schiphol 19th of February 2016. ENCALS centres from UK, Ireland, France, Spain, Italy, Switzerland, Germany, Sweden, the Netherlands and Belgium were represented.