Our outpatient clinic at Charité Universitätsmedizin Berlin provides diagnosis and multicisciplinary care to around 800 patients with ALS and related disorders, including the follow-up of primary and secondary care. Our clinical research currently focuses on managed care, shared decison making (SDM) and palliative care. The ALS outpatient clinic of Charité Universitätsmedizin Berlin is the founding institution of the ALS management platform AmbulanzPartner (www.ambulanzpartner.de).
| Charité Universitätsmedizin Berlin, ALS outpatient clinic | |
|---|---|
| Foundation year | 2002 |
| Director | Prof. Dr. Thomas Meyer |
| Principal investigator | Prof. Dr. Thomas Meyer |
| Contact information | |
|---|---|
| Address | Charité-Universitätsmedizin Berlin, Ambulanz für ALS und andere Motoneuronenerkrankungen, |
| Contact | Prof. dr. Thomas Meyer |
| Phone | 0049-(0)30-450560132 |
| thomas.meyer@charite.de | |
| Website | Visit the website |
Publications
- Kettemann D, Funke A, Maier A, Rosseau S, Meyer R, Spittel S, Münch C, Meyer T. Clinical characteristics and course of dying in patients with amyotrophic lateral sclerosis withdrawing from long-term ventilation. Amyotroph Lateral Scler Frontotemporal Degener. 2016;18:1-7.
- Maier A, Deigendesch N, Müller K, Weishaupt JH, Krannich A, Röhle R, Meissner F, Molawi K, Münch C, Holm T, Meyer R, Meyer T, Zychlinsky A. Interleukin-1 Antagonist Anakinra in Amyotrophic Lateral Sclerosis- a Pilot Study. PLoS One 2015;10:e0139684
- Funke A, Grehl T, Großkreutz J, Münch C, Walter B, Kettemann D, Karnapp C, Gajewski N, Meyer R, Maier A, Gruhn KM, Prell T, Kollewe K, Abdulla S, Kobeleva X, Körner S, Petri S, Meyer T. Provision of assistive devices in amyotrophic lateral sclerosis. Analysis of 3 years case management in an internet-based supply network. Nervenarzt 2015;86:1007-17
- Maier A, Holm T, Wicks P, Steinfurth L, Linke P, Münch C, Meyer R, Meyer T. Online assessment of ALS functional rating scale compares well to in-clinic evaluation – a prospective trial. Amyotroph Lateral Scler 2012;13:210-6
- Holm T, Maier A, Wicks P, Lang D, Linke P, Münch C, Steinfurth L, Meyer R, Meyer T. Severe loss of appetite in amyotrophic lateral sclerosis patients: online self-assessment study. Interact J Med Res. 2013;2:e8
Restricted information
| Serving population | |
|---|---|
| Serving population | 750 patients with ALS |
| Patient resources | |
|---|---|
| Population based register | No |
| Clinic based register | Yes |
| Geographically matched controls | No |
Banks
There are no banks for this centre
| Research activities | |
|---|---|
| Clinical management research | Yes |
| Neuro epidemiology | No |
| Neuro physiology | Yes |
| Neuro imaging | Yes |
| Neuro psychology | Yes |
| Neuro pathology | Yes |
| Genomics | Yes |
| Transcriptomics | No |
| Metabolomics | No |
Clinical Trials - Industry sponsored
| Name | Type | Patients |
|---|---|---|
| LEVALS: levosimendan in ALS | LEVALS: levosimendan in ALS | |
| VITALITY-ALS tirasemtiv in ALS | VITALITY-ALS tirasemtiv in ALS |
Clinical Trials - Investigator initiated
| Name | Type | Patients |
|---|---|---|
| ROCK-ALS: fasudil in ALS | ROCK-ALS: fasudil in ALS |