The ALS Clinic in St.Gallen has become the major referral center for ALS patients in Switzerland, offering multidisciplinary patient care as well as engaging in ALS research. Currently, 200 patients from all over Switzerland are being taken care of. Patients are seen on a regular basis usually every three months. We have developed extensive collaborations with the departments of pulmonology, gastroenterology, ENT, and palliative care. Research activities cover a broad spectrum reaching from quality of life research to genetic research. Extensive research collaborations exits with other European and US ALS centres. Besides ALS we are also engaged in diagnosing and treating other neuromuscular disorders such as neuropathies, myopathies, myasthenia gravis and peripheral nerve lesion. Clinical neurophysiology is a corner stone in our routine clinical practice and also in some research projects.
| Neuromuscular Disease Unit / ALS Clinic St. Gallen | |
|---|---|
| Foundation year | 2006 |
| Director | Prof. Markus Weber |
| Principal investigator | Prof. Markus Weber, Dr. Christoph Neuwirth, Dr. Nathalie Braun |
| Contact information | |
|---|---|
| Address | Greithstrasse 20 |
| Phone | +41 71 494 35 81 |
| Fax | +41 71 494 63 89 |
| muskel-als@kssg.ch | |
| Website | Visit the website |
Publications
Restricted information
| Serving population | |
|---|---|
| Serving population | Switzerland, partially Germany and Austria |
| Patient resources | |
|---|---|
| Population based register | Yes |
| Clinic based register | Yes |
| Geographically matched controls | Yes |
Banks
| Type | ALS Patients | Controls | Other |
|---|---|---|---|
| DNA bank in collaboration with Prof. Ammar Al-Chalab, UK | |||
| Tissue Bank |
| Research activities | |
|---|---|
| Clinical management research | No |
| Neuro epidemiology | Yes |
| Neuro physiology | Yes |
| Neuro imaging | Yes |
| Neuro psychology | Yes |
| Neuro pathology | Yes |
| Genomics | Yes |
| Transcriptomics | No |
| Metabolomics | No |
Clinical Trials - Industry sponsored
| Name | Type | Patients |
|---|---|---|
| Biogen 999AS003 |
Clinical Trials - Investigator initiated
| Name | Type | Patients |
|---|---|---|
| Quininsulfate (RCT) | ||
| SOPHIA | ||
| STRENGTH | ||
| MUNIX |